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Member
(06-18-2012, 09:18 AM)
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Jack Osbourne Diagnosed with MS
#1
http://www.bbc.co.uk/news/entertainment-arts-18478530
Quote:
As someone whose wife is awaiting test results on this I hope that the least that can come of this horrible news is that the profile of MS can be raised a little in the media. |
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shh! it's already 2014!
(06-18-2012, 09:21 AM)
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#2
Aw, that's terrible. :(
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Member
(06-18-2012, 09:24 AM)
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#7
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Junior Member
(06-18-2012, 09:35 AM)
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#10
One of my best friends when I was younger (in my mid-late 20s, she was in her early 30s) had it.
On the one had, it's really awful. But on the other hand, you can generally lead a fairly normal life. She eventually went back to college. But what she went through, yikes. I don't think I've admired anyone more that I personally knew, the way she handled it. |
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Member
(06-18-2012, 10:12 AM)
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#14
Not a fun thing to live with. They can never pick whether I have a rare brain/spinal cord disease or MS since they tend to be mistaken for one another yet I have concrete proof of both. Both end in a wheelchair and the spinal cord disease killed one of my dad's favorite golfers. Shit's not fun slowly watching your demise and taking 15 different medications. I've already had 5 big surgeries and like 15 or so back procedures done but to fix the spinal cord will only happen if it's a life or death emergency because the paralysis risk is so high when it's actual nerves to the spinal cord and not the disks like most people's problems.
I still haven't figured out which one I rather settle for. I still need a lawyer to try and get disability. |
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Member
(06-18-2012, 10:27 AM)
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#16
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Member
(06-18-2012, 11:06 AM)
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#19
Well, he's 26 and just been diagnosed; given that this problem with his vision is likely one of his first serious symptoms they probably won't know for sure yet.
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Member
(06-18-2012, 11:32 AM)
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#20
My wife's symptoms presented as numbness in her legs, which went away after 4 months and she currently has no noticeable symptoms. Her first test was an MRI which showed one single lesion, which may or may not be MS (as MS means multiple-lesions) so we're now waiting for lumber puncture results. So here we are nearly a year from the initial onset and we still don't know either way. It's positive (fingers crossed) that there hasn't been another attack since the first yet. |
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Member
(06-18-2012, 11:53 AM)
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#22
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(06-18-2012, 11:58 AM)
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#23
Poor Jack. I hope science comes through for us soon.
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Member
(06-18-2012, 12:42 PM)
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#24
Damn that sucks. My girlfriend and my best friends mom both have ms and it can be a scary disease. its a weird disease to diagnose because you essentially are diagnosed with it after a process of elimination.
On one hand I see what it CAN do to someone (friends mom) and also see someone live a fairly normal life with it (my gf). My friends mom is pretty bad at the moment and always says she wishes she was diagnosed just a few years later because the treatments are growing more effective each year. My gf used to get an infusion (can't remember the name off hand) and it was a miracle drug. It made her feel like she had nothing. There's a new drug she takes called gilenya which essentially lowers the immune system so it can't attack the body. Of course the downside is when you get sick you get hit HARD. But it still works well. Its good they caught it early though and at a time when there are various treatments available. If its relapse remitting he should be fine |
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Member
(06-18-2012, 12:55 PM)
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#26
Here's hoping the stem cell research pays off as that seems the most promising (ethical arguments that I don't want to derail the thread with aside). |
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Member
(06-18-2012, 01:04 PM)
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#27
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Junior Member
(06-18-2012, 01:07 PM)
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#28
It's a tough thing to deal with. A friend of mine plays in a band called Olivia Tremor Control and was diagnosed with it a few years back.
He went straight onto medication for it and at the same time started drinking heavily, and really didn't cope with it well at all. Two years later, he remains on the medication but has started a vigorous self-help regime and is generally looking after his body a lot better. The results: He's gained 90% of his life back. You wouldn't even be able to tell he has it now, apart from his physical and vocal ticks. Really hoping he manages to keep on keeping on and there isn't any other deterioration. It's a cruel, cruel disease though :( |
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Member
(06-18-2012, 01:55 PM)
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#32
It can do indirectly, via infection etcs. Remember it's your immune system attacking your body.
It depends on the severity of the sub-type and just luck really. According to the internets most MS sufferers live to a normal average age. Just unfortunately with a much lower quality of life when they're older. |
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Member
(06-18-2012, 02:00 PM)
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#33
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Americans out of Mexico! The Border Tax Equity Act
(06-18-2012, 02:06 PM)
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#34
At the age of 26 no less. That's awful. |
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Member
(06-18-2012, 02:23 PM)
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#36
I was preliminarily diagnosed with MS about two years ago, but the symptoms and test results were so minimal that the two MS specialists I've seen since are much more skeptical about the diagnosis than the neurologist who I initially went to with symptoms. MRI turned up a few small brain lesions (which is technically "multiple sclerosis") and no spine lesions. No change in two years, have not had a lumbar puncture. I had a really rough week in 2010 (which prompted the diagnosis) and then a cornucopia of minimal or moderate symptoms over the next couple of months. For about a year and a half though I've really felt nothing too significant--I'm so used to the tiny things I feel that it's impossible to tell whether they're symptomatic or just normal neurological "tics". Certainly nothing I would have gone to the doctor over if I hadn't felt like I had a brain tumor or ALS in 2010. Literally know one would know I had any issue unless I told them. It was of course not fun being told my results initially pointed to MS, but in retrospect a lot of the stress and panic in that initial "attack" was that I had no idea what was wrong with me and I thought I was dying. As a relatively young person, there are many worse things to be told is happening to your brain than multiple sclerosis. If I get another significant exacerbation it'll be more like "ah fuck, dammit MS" without worrying how many years left I have to live. |
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Member
(06-18-2012, 03:22 PM)
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#42
that sucks, he seems like a good guy. on a more positive note, here's someone who cured her MS by changing the way she ate - http://www.youtube.com/watch?v=KLjgBLwH3Wc
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60 fps 60 fps 60 fps 60 fps 30 fps 60 fps 60 fps
(06-18-2012, 03:30 PM)
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#45
Terrible shame. :(
My mother is suffering from this and, in the past ten years, she's gone from fully active to a wheelchair. It hits hard and fast. :( I've heard that it attacks men more rapidly and severely, however. I know of a man who's in his early 50s and is almost completely paralyzed by MS. |
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I have a foreskin yet I do not have AIDS
(06-18-2012, 03:33 PM)
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#46
A friend of mine has it, shitty disease. |
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Member
(06-18-2012, 04:11 PM)
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#49
So my heart and best wishes goes out to Jack Osbourne and anyone else living with this disease. |
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Junior Member
(06-19-2012, 09:04 AM)
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#50
To all MS sufferers in this thread, have you experimented with Marijuana?
My friend noticed a significant reduction in tremors and tics after smoking it. Not that I'm condoning any activities that may or may not be legal in your respective jurisdictions. |