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Do you live with daily pain?

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Another update, I'll be leaving the house in about 4 hours to go to the hospital for the facet joint injections under xray that I talked about before, they'll be doing 5 - 6 joints. I really hope this works better than the lumbar epidural which didn't help at all. It's 1:30am here so I won't bother sleeping at all, hopefully I'll be seen early but it's random, basically the specialist books a bunch of patients on the same day and just works his way down, so it could be morning or afternoon. Luckily the NHS are paying for private care so I get my own room and the staff are very friendly which is nice, they even give you paper pants to wear so you don't have to free ball it like a savage! (fancy i know) ;)
 
I did for a long time, then had spinal surgery for my neck. Had two discs removed and feel much better, but still need to be careful and not lift anything heavy.
 
Back from the hospital, injections hurt a bit but nothing too bad, I felt a bit doopy for about 20 minutes then I was done. Back is sore now but I guess that's expected after 6 injections, I'm just hoping this works so I can get my life back, even if that means trying to find a job and the soul crushing depression that comes with it.
 
When the weather is damp and when winter rolls around, forget about it..my whole body aches.

I need to move somewhere that's warm all year around.
 
I suffer from cluster headaches. It's subsided considerably over the past year, but when I wake up with one I know the next 12 hours minimum will consist of me writhing in agony and wishing I was dead. And usually vomiting too.

And then suddenly it's gone. It's unpredictable. At one point I was getting them every few days back when I was at university.
 
I hope the i injections work.
I live with daily pain on my joints.. Mostly knees these days as I have learned to manage all the other ones best as I can. It is supposedly some form of arthritic condition. Worst thing is I hate excersizing because of the pain but I know if I dont do it I will gain more weight and be out of shape. wich will cause more pain(s)..
I need to bite trough it ..but it does suck. Good luck to you all..keep your head up.
 
My back has been fucked for the past couple of months.
One day I couldn't straighten up and that lasted for 3 or 4 days.
Now it is still stiff every time I stand up, gonna have to exercise I think :(
 
Wore full kit in the Army for 6 years and now my back is pretty fucked up. I wouldn't say it's daily pain, but it almost is. Sometimes I can't even stand up. I went to the VA and they took some x rays and told me that I have degenerative disk disease and some other condition that I don't remember the name of. Fucking great, right?

I've found that working out helps it the best. I'm not sure why exactly... maybe strengthening the back muscles takes pressure off of the spine or something?

I also have inflammation in my jaw that makes it difficult to chew food. No idea what the fuck is up with that.
 
Russ T said:
I had a slipped disc a couple years ago and I literally couldn't walk some days. It was pressing on a nerve that would send sharp pain all the way up and down my left leg. It nearly broke me. I got some injections and a prescription and it seemed to work for a while, but then it stopped working. Then I had to move for a new job!

Fortunately, at some point, it apparently slipped back into place - or at least off the nerve.

Then I got patellar tendonosis on my left knee and couldn't walk down stairs anymore. My hip was out of alignment, twisted slightly, such that my right leg became stronger than my left leg, and when I started going to the gym regularly for the first time in my life, my left KNEE had to work harder to make up for the weaker muscles. After a few months, well, I had to stop going to the gym. But physical therapy finally seems to have worked, after almost a year, right when I had about given up and went in for surgery...

And now I'm honestly afraid to start going back to the gym. :

Basically, yeah, I have, and it's fucking miserable. It keeps you from doing so many things you want to do. I hope you get better. ):
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I have a ruptured disk, it's pressing against nerves. And a bulging disk below it doing the same. So I have pain running down the side and the back of my left leg as well as a burning pain in my lower back.
 
Every single day I live with pain. Every since I was around my mid-teens I get random instense muscle pains, which lead to sore ears, jaw, and headaches. I am prone to migraines as well. I thought this was normal due to all the pain relief adverts I see on TV of people needing panadol to get on with their day, but it turns out it isn't and it made me really sad. I cried a lot to find out that what I thought was normal isn't normal and it meant even more doctor visits. Now I have to keep my partner posted about what pain I'm in. Sometimes it's so sore I cry.

I've been tested for Polymyalgia and it seems I don't have that, so it might be a symptom of my hypothyroidism. However in my last blood test my blood sugars had dramatically spiked since the last (only a few months) and now I have to get tested for diabetes too - so maybe I have nerve damage or something that's related to said condition.

I already take two medications daily (for my thyroid and mental health) along with pain killers when my pain gets real bad. When I hit my 30s I'll need to start taking blood pressure medication too due to my hypertension.

Life is... hard. My body is sore and tires very easily just from basic day-to-day activities. It's why I'm on gaf so much. It's why I post a lot.

What helps me is distractions. An RPG, or a TV show, one thing I can focus on. That and massages. They help. Sometimes.
 
I have pain issues too. Mostly wrist-related from too many years of gaming + my work involving computers.

I should probably go see a doctor, but there's no real "cure" for what is almost certainly CTS. Surgery might alleviate pain but the situation will just get worse unless I basically stop doing the one consistent thing I enjoy in life and change my career. Forget that. I have been doing other things like wrist exercises, taking breaks, and working on correcting my posture (which actually just seems to make the pain worse). I also wear thick braces which help.

Outside of that I started lifting weights. That causes pain of a sort the next day, but of the expected and not severe variety.

What really causes pain though is some of the house work I do. Splitting wood sucks, mainly because of having to bend over 50000000x and chuck pieces of wood over to the wood pile after splitting, then bending over another 50000000x to restack it. Got a log splitter a few years ago because I just couldn't do it with an axe anymore, still doesn't stop you from having to stack the shit.

Today, my right shoulder feels all sorts of fucked up. Gonna down some aleve and help my dad move a 200lb concrete slab and move a large pile of 3-4 tons of dirt from last years landscaping project. Also I have somewhere to be this afternoon which means hauling ass to get it all done fast.

Also I stayed up until 1am playing Overwatch for about 6 hours last night.

Not really bitching too much. I like the work, just not how I feel the day after.
 
I have trigeminal neuralgia and three different types of migraines I have three different types of medication for. I am a pain elemental. Nietzsche has nothing on me.
 
yup! looking at spinal fusion surgery in the next year. been living with pain for the last ten years. every exacerbation gets worse tho.

jesu said:
My back has been fucked for the past couple of months.
One day I couldn't straighten up and that lasted for 3 or 4 days.
Now it is still stiff every time I stand up, gonna have to exercise I think :(
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you should get evaluated by a physical therapist who specializes in movement disorders. you will likely recover on your own but the underlying problem is still there and needs to be adressed. they can evaluate specific muscle imbalances, functional movement patterns that are contributing to your condition. if they arent adressed you may wind up like me ten years later with no disc left and kissing vertebrae. wish i would have been recommended PT from my doctors. i'm a PTA now and did a clinical affiliation with a PT who specializes in movement impairment disorders. it was brilliant and really opened my eyes.
 
I have very frequent migraines with no aura. Been haveing them forever, probably, but only recently we started looking at it as something to cure by itself. My migraines manifest as the feeling of having something pushing towards my left or right eye, and I cannot do much while in that state, either physically or mentally. It used to happen basically every day, now it's down to twice a week, usually.
I am following a therapy, but we are still in the "try this and see how it goes" phase of things.
 
Did you try chiropractic? Some chiros are scammers (e.g. KST), but many are also legit medical helpers. (e.g. most Gonstead chiros)

I don't live in daily pain and would wish that on no one. Heavy benching made both of my shoulder kinda fucked up, but it only hurts a split second in specific situations.
 
Does daily misery count? I've been physically sick for 7+ years and struggled with mental illness for even longer. I've only left my house a couple of time in the past 2 years, I think. So if my posts seem jaded and negative at times, it's usually because of this. :p
 
Yes, I have CRPS (Complex regional pain syndrome, aka the suicide disease) in my left hand, I have tried 7 different medications which did not help the pain and all gave me horrible side effects. I lost my job because I cannot be on a computer 40 hr a week and my dr. will not clear me to work and has said I can never do a job based with computers, repetitive motions or lifting again.
 
I had a sternal thoracotomy to remove a tumour last year and have a constant, dull bone pain all the way down my chest. Doctor said the pain will never really go away, apparently it's the most painful operation you can have.

I've learned to deal with the pain, though I can't help but feel it has coarsened me emotionally. I still feel irrationally protective over my chest whenever I feel afraid, like an animal guarding its wound.

I've been able to overcome this by being glad I'm still alive and otherwise healthy. Daily physiotherapy also helps.
 
I have Ulcerative Colitis. Causes joint pain, stomach/bowel pain, chronic fatigue, and sometimes it feels like my entire body is humming with fire.

I take tramadol for it, which messes with my short term memory and can make me feel really cloudy. I gave one to a friend once and he almost passed out an hour later, I have no idea how I manage to take 3 a day and still be productive.

It makes me wonder how much more I'd get done if I didn't need them.
 
St3v3 said:
Back from the hospital, injections hurt a bit but nothing too bad, I felt a bit doopy for about 20 minutes then I was done. Back is sore now but I guess that's expected after 6 injections, I'm just hoping this works so I can get my life back, even if that means trying to find a job and the soul crushing depression that comes with it.
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That's great news and I really hope the injections work for you. I have had that done twice. I also had steroid injections 5 time's and 10 trigger point injections. They are going to start burning my nerve endings. It essentially kills them. They have to be careful because if you burn the wrong one you're I'm screwed.
 
I had a rare condition in which I was born with an extra muscle in my hand/wrists (move your pink up and down and you'll see it moving in your wrist, the pain appeared out of nowhere) which tortured me for years. Now that's it's gone (for almost a year now) it has finally calmed down a bit but it's still there, I'm glad I can still participate in my daily life as there are lots of unfortunate ones who aren't able to...
 
Back pain from when I played high school football. I feel backwards and tried to instinctively catch my self with my hands we didn't even win a CIF championship and all I got was a fucked up back. I'm 25 and like to lift so that makes it even worse, daily back pain but I just gotta reach my dream and I'll stop haha. I really gotta go see a chiropractor.
 
hunchback said:
That's great news and I really hope the injections work for you. I have had that done twice. I also had steroid injections 5 time's and 10 trigger point injections. They are going to start burning my nerve endings. It essentially kills them. They have to be careful because if you burn the wrong one you're I'm screwed.
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I just woke up and I'm very sore and stiff with some sharp pain from the injections I guess, definitely not nice but bearable, I just took some painkillers which will help hopefully. And yeah I'm really hoping they work, I am sick of 24/7 pain and I just want to start living a normal life. I can't use the PC for awhile so it's gaming with a controller for awhile, luckily I have a game or two that can be played in bed on the PC.
 
The injections will be short term 'fix', but they work surprisingly well for a bit. How long depends on the damage they're helping.

In my own case, the injections didn't work for more than a few days, then off to the surgery with me. But one thing I tell people, and they really don't believe me is: In 2 years you'll be genuinely shocked at how much daily pain you can just live with and ignore. It'll never be like new, but you really can deal with it.

Also, inversion table. I was shocked after I started using this thing. If I come home after a bad day, I hang myself for 10 mins, and get a couple hours with some relief from it. It works better than I could have ever expected.

But one thing, whether injections or surgery. Don't expect to be like it was before. You're just setting yourself up for a bad time down the road. Pain management will be a part of your life forever.
 
rpg_fan said:
The injections will be short term 'fix', but they work surprisingly well for a bit. How long depends on the damage they're helping.

In my own case, the injections didn't work for more than a few days, then off to the surgery with me. But one thing I tell people, and they really don't believe me is: In 2 years you'll be genuinely shocked at how much daily pain you can just live with and ignore. It'll never be like new, but you really can deal with it.

Also, inversion table. I was shocked after I started using this thing. If I come home after a bad day, I hang myself for 10 mins, and get a couple hours with some relief from it. It works better than I could have ever expected.

But one thing, whether injections or surgery. Don't expect to be like it was before. You're just setting yourself up for a bad time down the road. Pain management will be a part of your life forever.
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Yeah I figured, I just want to get to the point where I can work 9-5 without being in agony which is the case now hence the unemployment, luckily my stepfather owns his own business and has offered to let me come in 1-2 days a week to fix some laptops which I'll get a % of the sales on, basically I can slowly build up my time and if I need to stop I can, it'll be a lot better than finding a real job for now where I'd be expected to actually do my job for the full duration of the day, plus a little bit of cash would be nice right about now.

I know I still have a hard road ahead of me, I just hope this is a big step in the right direction, the specialist said full surgery is an option but he wants to get all the safer options out of the way first which is fine by me, surgery scares the shit out of me honestly. I'm starting with a new physio in 2 weeks which has honestly never helped much but we'll see, then I'll see the specialist again in August. For now I'm just going to rest, watch some TV and keep my fingers crossed.
 
First I dont like to self identify with these conditions but they are and have been part of my life experience at the moment. Have what would be categorized as stage 3+ hidradenitis suppurativa, tried tons of meds, various injection and IV based meds, even had radiation done for it which rare.

Affected more areas than most including face, scalp, back, neck. Developed vasculatis from remicade which was given to treat the HS. Have/had leg ulcers from the vasculatis (still going to wound care once a week where the wrap my legs). Siting, sleeping, and moving can be pretty painful due to open wounds (literally just started bleeding all over the kitchen floor get my kids a snack) and because all the surrounding tissue and associated joint have lots of inflammation.

I do take pain meds and steroids and immune suppressors. Majorly cut back on pain meds this last year. To the point I might need to bump them back off as certain things are to hard without them. I'm a single dad raising 2 girls.

The pain can be bad, and moving like someone double my age at times can really suck. But i am one positive fucking dude. Always trying to improve and make things better. Pretty happy and confident and try to show love to everyone I meet. I will get better or die trying. (for example I've been walking 10 miles a day for weeks now, though I pain med up so I can physically do it.)

What bothers me and I'm working on now is dealing with lack of patience at times and being snippy to my kids. This happens when pain is high. Meditation helps, as does yoga, both of which I plan to increase again. (going to also see if medical marijuana helps with pain and mood soon)

Being pro active is what helps me. Progress or trying to make progress. Some forms of self help are a big benefit as well.
 
my grandmother did...she used to have severe lower back pain to the point where she used to cry....times she look at my and cry "make the pain go away!" it used to hurt me so bad when I couldn't do anything.....

a little part of me was glad when she passed....

:(
 
Got out of Hospital last month after a 3 week stint from Transverse myelitis, demyelinating of my spinal chord in 6 places. And also in the nerves of my right eye. From my stomach down to my feet is completely fucked sensory wise as are my hands sometimes. I have to use a wheelchair if I have a medium or long journey on foot as I can't walk for long.

No pain anymore, that was only for a few days but I am uncomfortable always. At the 3 month period now... told that if nothing changes at the 6 month mark I'm basically fucked. Some good news though, I used to get these attacks that would leave me on my back violently shaking and nearly unable to use my body correctly due to severe proprioception issues.

Being 28 and disabled sucks but I had no life before this happened due to my mental health issues so I don't miss certain things I never did. Though these days I wish I went out more and appreciated little things more...
 
Headaches, almost all the time, though it varies from tolerable to debilitating.

Im pretty sure im destroying my stomach with all these naproxen and ibuprofen tablets.
 
Yeah, I now almost have six year a constant headache. Woke up with it one day and it got worse and worse and I couldn't go to school for five months and couldn't work for seven. And all these years later still not a single clue what it is and it pushed me really to a place I'm really uncomfortable with even mentioning. It absolutely sucks and when there's another day where it's a lot worse for whatever reason I'm absolutely wrecked for at least three days to a week and it happens at least once a month.

Worse part is after all these years no one really seems to care anymore whenever it happens. I get a single: "You need to keep your usual daily structure.' which is a bit difficult when you get fucking wrecked by pain.
 
I have lupus, so yeah.

It's really weird having an invisible disability. Takes meds and shots and shit to stay alive, but looking at me you wouldn't think I suffer at all. Keep a happy face on to make it less obvious. Not fun, but you gotta push through.
 
I have occasional lower back pain but reading your guys' responses, it's nothing compared to what some of you are going through. :(

Props guys for pushing on with all that pain.
 
-shadow- said:
Yeah, I now almost have six year a constant headache. Woke up with it one day and it got worse and worse and I couldn't go to school for five months and couldn't work for seven. And all these years later still not a single clue what it is and it pushed me really to a place I'm really uncomfortable with even mentioning. It absolutely sucks and when there's another day where it's a lot worse for whatever reason I'm absolutely wrecked for at least three days to a week and it happens at least once a month.

Worse part is after all these years no one really seems to care anymore whenever it happens. I get a single: "You need to keep your usual daily structure.' which is a bit difficult when you get fucking wrecked by pain.
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This is my greatest fear. One time I had a headache for a week and felt like dying everyday. Nothing is worse than going to sleep in pain and waking up in pain. Keep the fight up! If it started randomly it will most likely stop one day as well.
 
Media said:
I have lupus, so yeah.

It's really weird having an invisible disability. Takes meds and shots and shit to stay alive, but looking at me you wouldn't think I suffer at all. Keep a happy face on to make it less obvious. Not fun, but you gotta push through.
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Yeah, and then there's also the anxiety about whether people will believe you or not when you tell them about it. It's awful.
 
dity said:
Yeah, and then there's also the anxiety about whether people will believe you or not when you tell them about it. It's awful.
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I've lost friendships over it, people who think I'm making it all up to get out of work. Because clearly I enjoy fighting with the government for a paltry, barely able to live on disability check.
 
jb1234 said:
I've lost friendships over it, people who think I'm making it all up to get out of work. Because clearly I enjoy fighting with the government for a paltry, barely able to live on disability check.
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I don't know what people think is so great about living on welfare and feeling like you've been beat up every other day. I wish I had more money. I wish I didn't have to treat the welfare office like I'm a toddler reporting every new diagnosis like I got a new boo boo every few months, and I wish I could do more than one outdoor activity a day.
 
28 and have had ankylosing spondylitis , sacroiliitis since the age 17 have cycled between different NSAID, DMARD and anti TNF injections, early on my disease I was told my pain was because of my weight and then had MRI and Xray a year later which showed damage to my spine and hips. I now lay down in bed 24/7 and cant sit or stand with out excruciating pain.

Depression is the byproduct.
 
I definitely feel you OP.

I have severe eye issues. You know that feeling of having dirt or something in your eye? I live with that 24/7 365. Sometimes it really gets to me. There's absolutely no pain medication or treatment they can do at this point to help alleviate the pain. I need a corneal transplant, but I have to be infection free for at least 6 months. In 4 years, I haven't been able to meet that goal. So, I have to live with the pain.
 
Media said:
I just don't tell people until they get to know me. It's easier for me that way.
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I guess the situation would most apply to interacting with social workers who must believe you before they will give you money so you can eat.
 
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