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Can you help me?

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Jotaro

Banned
I cannot think of a better title sorry.

I read the off-topic forums for a while, and I think that you may or may not be able to provide maybe a glimpse of help, which I desperately need and have no place to turn onto. Please, this is going to be long, if you read quickly, go to the games forum. If you want to be ironic, please be careful, if you want to flame, put some meat on your bone at least. And I am not an attention whore, I know better, sure here cynism is everywhere, but there are many sensible persons that I appreciate readingI don't know where to begin, I think I may well be the most intricate sick person in the world.

In late 2003, following a scan, a tumor was found into my brain. And so was explained to me why my senses were collapsing day by day since late 1997 at least. In january of 1998, I heard my first tinnituses. Later, my eyes began to get ultra-sensitive to everything. People did not knew how to deal with me, and my confidence in others didn't helped me out. A stubborn neurologist refused a scan, even if I insisted, which clearly would have shown the tumor. Later, everytime I would say that the problem would be something like this, this jerk' 5 minutes of stupidity while I sat in his office would sweep me away. So people gave me all kinds of pills.When you are an adult, and you are not told what you take (it's to help you, fuck yeah, right), or even less it's side effects, that's just... criminal. So people gave me pills, I had confidence. Afterwards, I discovered that I was given anything, I felt like I'd been a laboratory rat! People were clueless, but still prescribed me this, and I, desperate to cure my senses, trusted the doctors and took it. After the tumor's discovery, I gathered everything I was given. I was shocked. Luckily I quickly stopped all that shit. Christ, stuff given to mentally insane people, to depressive people, I've always been one hundred percent sane, and I have never been in a depression despite the sadicism my life went through.

Then, I quickly took back the strings of my own life, I searched for everything for a better cure. Healthcare is sometimes hard as fuck in Canada, so I had only my imagination and my knowledge to help me out. I had google too. ;) So I gathered everything, I found a doctor I could trust, I went into a neurological center, and in the end, I am treated right now with exactly what I suggested in the first place, I confused all skepticals, prominent doctors, I'm quite proud of this accomplishment. :) The tumor (non-malignent, thank God) has train-wrecked my life. It had probably spawned when I hit puberty, it was undiscovered until almost twelve years later. :( I began to be obese, and then morbidly obese, and so I was bullied to death in high school. I remember my father thinking I was eating too much, wanting me to be like everyone else, yelling: "Lay off the fatty food, you eat too much, don't go to Burger King anymore!" My father little did he know what was happening. And I saw the others kids eating pizzas and burgers applenty, I barely ate a Whopper and my father would get bad at me. I learned wisdom, I kept a low profile, and escaped highschool intact. In september of 1998 I began College, but I always had to trop out of my computer science courses. I had anemia (which I did not have a clue that I had it), I was always tired as hell, I never could concentrate to learn how to program efficient C modules, and in the end of 2001 I definitely dropped out, I was dried out.



Since that moment, I had to stay home, I still maintained a normal life. But I could not go back to college because my senses were killing me and I was too tired. My friends however completed it, and moved in Montreal either to study further, or to make a living. And so, I cannot say I have a single friend from my College days in my city anymore, because they are all gone. Either I've completely lost contact, or either they are too busy. No one will come around my house. But I need it, badly. Here are the senses problems I have. Don't try to suggest me ways to get around, either they are non-pragmatic, or I have tried and they make things worse. I have photosensibility, so I virtually always stay home. I can tolerate the sun, but my retinas get burned quickly, and brings pain. I also cannot tolerate any video, animation, whatsoever, no matter how I view it. I have tinnituses, but they don't bother me. However, when I began the pills to make my tumor shrink after I changed treatments, I had severe hyperacusis. Hyperacusis is sensibility to sounds. If I ever listen to 10 seconds of music, I will get intolerable pain, pressure, and vertigo into my ears. And it will take hours to get away. I am sensible to extreme sounds. If a massive object falls on the floor above my head, I will get a similar sensitivity too. Imagine how fun a life it makes.



My retinas will be sensible to almost everything. I will have sporadical chromasensibility, prestibism, so I can use my computer and browse the web, but even at that, plenty of colors, patterns (which produce a moiré like effect, which hurts my eyes to death), fonts, anything, will get in my way. If something makes it that the font is hard to read for my eyes, well my retinas will get the spaces between the lines burned into them all of a sudden, and I have to stop. It hurts like fuck. Can you imagine a life with no video, no games, no music, no... nothing? Everyone tought I would go on and become a great scientist, a great doctor, but a tumor ruined all of my life, I wasted my youth suffering, trying to cure a disease I did not understood until very recetnly. The last video game I have played is Soul Calibur 2 on Xbox, the last movie, I viewed the first Back to the Future DVD, in september of 2003. I also watched my last tv show in that month. Since then, I cannot stand zilch.

And with hyperacusis, I had to kiss my social life, and pretty much, my life goodbye. I feel like I live in a nuclear vault, like I am stuck in an Aquarium, seeing the world around me, trying to keep that out of mind but not being able to help it in the end. Since I cannot tolerate music, which is everywhere, I cannot go nowhere. I strictly only go outside to medical appointments (which I stictly administrate) and a few sporadical meetings with my family. Outside of this, I stay home, all the time. I just have to! Otherwise, it would be suicide for my senses. Remember guys, you sure have your ears and eyes fully intact, these are your most prized possessions. People just don't understand this. This makes me a perfectly normal individual, but stuck in a vault against his own will. You cannot even conceive how complicated my life is, it would be like a man born blind trying to understand what colors are.

You may have seen me post about games, about hardware, consoles, and stuff. You did never seen me talking about playing a videogame, I cannot. Nor listening to music, nor watching a flick. I cannot do that anymore. There are memories. But then again, I hold on tight onto my passions, which are fully intact. If you were in my place, would you still follow videogames, movies, music, and stuff or get sick of it all? I chose to learn as much as possible, and to follow still my passions, and I am frankly proud. I was on welfare, I now work and I get money, and since I cannot do anything with that but trying to make me happy, I spend it on my passions. My DVD collection, my video game collections have never been so big. Recently I got Resident Evil 4. Before that, I made sure to have the component cables ready for the time the game would be released. I tought I would be cured, but a complete cure (which is what will happen) will need more time, so no such luck. I look at the box, I look at my videogame and movie kit I set up while knowing I cannot experience it until I am cured, always trying to go for the long run.



Can you imagine how fucking hard it is not being able to play this masterpiece? I've got great PC Games too, I got Metroid Prime 2, Metal Gear Solid 3, Halo 2, Paper Mario 2, I tried to get all the biggest hits, and the greatest movies. It's hard while looking at my bookshelves not to sometimes take that and throw it in my garbage can, but this is what I've done, and I am proud of. Someday, like a phoenix, I will be reborn from my ashes into a man. Since nothing is wrong with me, I will have a perfectly good life! I lost half my weight, and took good care of myself, so not only am I not an ogre anymore, I might well have become an handsome young man. Unfortunately, patience must prevail. And it's hard. My ears and eyes keep getting worse, because we try to calm my nerves, and all the neuropathical pain shit the tumor spawned, which causes my sensibilities to almost any stimulus. Sometimes, I suffer so much I want to die. I don't know, maybe I'm brave, maybe I'm a pussy, maybe I'm both. I never attempted suicide, because I was afraid of dying, or not having done anything with my life. I had faith that patience would bring rewards to me in the long run. I worked like an ant instead of singing all summer long like a criked. So here I am, standing here, waiting for a cure.


I might need a surgery, but it's not sure it might help me out. So we prepare everything, and access to one of the 8 or 9 neurosurgeons in Quebec is hard. You cannot conceive on how sometimes, bureaucracy about healthcare in Canada seems to have been conceived by Georges Orwell. So frigging long and hard to get a cure, full of clueless physicians. So I might get one, and be freed from all this. At last. Or we will find the right combination, the right dosage of medication for the neuropathical pain to go away, and I also get cured, I become a man instead of a lurker. :)

Please don't react to my posts differently if you read this. Yes I cannot experiment pretty much anything, but I like videogames more than ever. I like to recall my memories. I like to analyse, I like to share my passions. I am extremely intelligent, and I have an incredible mind and memory. I had to fine tune it to get something out of this healthcare system, and it's incredible. I cannot wait until I can finally experiment everything, my life will be a living dream.





Sorry for the novel I just wrote. This was not meant as a blog, I just wanted to try to really explain how my life was. While awaiting a cure, life stinks, my life's gone down the pan. The goal of my thread is, I want to know if you think you can help, in any way, to make me feel better. However, it's a tricky road, but the destination is awesome, even if I feel like a Don Quixote.

Please do not suggest medical, or tricks as for my senses and health, I've tried everything. Sorry for my redondance. ;)

I have a life in theory. I'm sure some philosophers would kill to be in such a state, but I'm just an ordinary man. I want to enjoy life, I want to go beyond the pain, the broken dreams that make for my daily bread, and still enjoy life. I achieve this, but I'm running all out of steam. Of course, going outside, playing games, listening to music, watching flicks, animé or tv shows aren't options for all I've said above. There is not much left. I have the Internet, I have my computer, but except for theory, I cannot enjoy my current life much. Even then, I cannot abuse it because my pupils get dilated like melons. I have to find imaginative solutions to find enjoyment. I want to wash away the sorrow, I want to feel happy and to laugh without feeling awkward. I really enjoy magazines. I have accumulated a huge load of video game and movie magazines. When my senses went berserk in the end of 2003, I had to stop everything. I can only bear a computer screen because I have found a good LCD monitor. I basically, for a long while, couldn't do jack but to talk on the phone, talk to people (when they were in my house, so just sporadically), think about my life, walk around in my house and admire my possessions. That sucked hard. I looked at my huge stacks of PC Gamers and EGMs.

I tried to look at them, but I had presbitism and my eyes were hurt so I had to refrain. One day I couldn't cope with it anymore, I tried to read a magazine. It was the EGM with The Getaway: Black Monday on the cover. I could not believe it when I did not lost focus of my eyes, and I could read the articles! I kid you not, I cried tears of joy upon that magazine. I could read again, wow! I read the reviews and learned about games I had lost contact with. I read Seanbaby, and I laughed with good heartedness. I read every magazine I had as days went by. I read PC Gamers, I remembered the good old day when I would play adventure games, go to lan parties, crash the network in college while playing Quake 2 with my buds. I read about the console, the games, and I got found memories. Unfortunately, I cannot read much of what is printed now, because my eyes are sensitive to patterns, it's like my vision is too sharp. Fortunately, I can still use the Internet. I do not visit a lot of websites, most of the times, the colors or patterns, the fonts will bothe me too much. GAF, I can but not too much, the fonts are not right enough. I tried everything to adjust settings better, but I cannot read too much. I read tons of intelligent discussions, and I enjoy all of this. But I also have to skip tons of discussions, that I really miss.

I like internet forums, but I need something else. I need to feel human again. I have so many problems, I do not use IRC, I cannot cope with any software because of colors and patterns. I use MSN, I chat with friends, but ultimately it's superficial, I still need something more. I have no interest in porn. I am not a sex freak. I'm just a romantic guy, I always discarted short term relationships with girls. So no, sexual arousement would not appeal to me in any form. But I cannot meet a girl, I would need to go out to clubs, to a movie theater, to just get out! I want to go to EBGames and deal with the underpaid nagging clerks instead of ordering my games online! That just cannot happen, painful visual stimulis and music refrain me from everything. I thus cannot make new friends, and meet a girl. Altough my physical appearance is now quite nice, I'm stuck. But my feelings don't stop. It's the worst thing in the universe, you have feelings, you have instincts, and you've got to fight with them against you will!




I'd like to make a new girlfriend, but it's utopic until I am cured, when I will be I'll be succesfull, but I do not know when that will happen, other then in a relatively short term. My feelings are rusting me, but I must cope. God that is hard. ;) I have no friends who can come toward me. Save for a lucky coincidence, I will have to rely on myself. I don't know, it was not like me, but I'm sure there are moments in your life when you tought you were virtually dead. Of course you could go out, but I cannot, and ultimately, the problems still remain. Same things with your hobbies. Same things I guess for your relatives. When I could do all that, the things I missed took all the center stage in my life. So when you were like that, you did not wanted to wake up, I guess you had at some point to accept yourself, to just like yourself. I look at my mug in the mirror. I have a stache, and it's grown all of a sudden! It really makes me realized I'm not a teen anymore. The mirror never lies, and it makes me see not a little boy, but a man. Yes, people tell me I'm nice, cute, entertaining, intelligent and all, but that does not heals my wounds. How could I succeed in boosting my self-esteem, to like myself? I look back at what I have done, I am pround, but as for now, I cannot like the man I saw in the mirror, in my man I'm still a teen, I have not been able to live my youth, so I'm like, not able to accept myself as a man yet.

For sure I must do things I am proud of. I repair PCs, and I enjoy that. I will fiddle for hours on end to fix that goddamn piece of silicon junk, I feel like a surgeon. It's nothing, it does not gives me much money, that's something I can be proud of, but it can only go so far, and it went too far, I need more somehow. I will play with my HDTV I cannot even watch, I will optimize the cables, so that all the consoles will be setup with the best cables, I modify my setup, I'm in the back of my tv with a gazillion cables, trying to build something. This kind of thing I can do, but I cannot bear watching the screen when the TV is powered on at all. :( I don't know if any of you have suffered serious diseases and had to go through some similar stages as I did. What could I do to feel better? I've done a good job, but I am tired of living in theory, I want to experiment life! There's a beautiful forest behind my house, I want to look at the pretty view, I want to get out, but it's not worth it because of my fuxored senses. It's like thigns are right in front of me, but I cannot experiment them. I look at my videogames, my movies, I feel like Ulysse bend to a pillar with the mermaids singing.



Unfortunaltely would be like Adam Sandler in Punch-Drunk Love if I tried phone sex. ;) I have a hard time looking for a day to come instead of the endless darkest night ever. But have you seen Monty Python and the holy grail? I'm like that knight who just won't die, when I think I'm virtually a lost cause, somehow I rise up and I'm not wrecked yet. :) Or better yet, I'm like Little Mac. I don't know how many continues I have got. That's stressfull. Everytime I have a hardknock, I manage to press a quickly enough to rise and rise, time and time again. Now I'm against Mike Tyson, I want to beat him and be the world champion. I'm made strong. I would need some help to heal my wounds while rising up for my final fight. :)


Of course, psychologists don't help. No, I'm not insane, I don't need a shrink. ;) I cannot rely on my family. I do not enjoy creating a blog, I'd rather tough to myself other then warming me up with writing things online. I feel like someone speaking in a feel of crickets, only without the sound of crickets, so if there's no communication, it's of no use to me.

That's pretty much it. If I spawned confusion, melancoly, any kind of bad feelings for you, I'm sincerely sorry and I apologize. I know it's almost impossible. Keeping in mind the limitations I cannot go further, what could help me feel better? Drugs don't work, alcohol would only mess my pills and thus my healing. Of course, what can someone reply to this? I expect no miracles. I except some kind of respect however. I know there are alot of incredibly interesting and imaginative individuals here, if you can help me, even if you are not sure, please try, it might well help me out. You'd be a good samaritan! :)

I'm sober, I'm sane, and it's not a prank, seriously these kinds of things do not invent themselves. Save for that thread, I plan to read and post a little on GAF just like I always did. But guys, if you think you can help a buddy out, I'd like if you would try. :)

Or at least, if you play a FPS, blast some zombies and demons in my place. ;)
 

demi

Member
I read your post.

Basically, to summarize for everyone:

His senses are fucked. Everything we enjoy in life, give him pain. Physical pain.

Hearing and Vision mostly I think.

He has a shit load of games (sounds like a nice collection perhaps from what he described), hoping that one day, a cure comes around for his tumor and such, and that he can finally enjoy what we all at GAF discuss and get banned over.

He has a crapload of magazines, but the colors and such hurt his eyes, like acid in a sense? But recently, he was able to read an issue of EGM, and he literally cried over it. I would too!

This giant blog post (which it is) is a story of how our good friend Jotaro wishes to stop living in his small, small isolated corner of the world and get out there and enjoy life like most of us do! One day, he hopes for a cure. Is there anyone who can help with his problem? Donate to the cause today.

I was somewhat moved, sorta placing myself in your position. It's like, ooo look at all these nice things...BUT YOU CAN'T TOUCH THEM. That sounds really, really shitty.

I hope you get way better! Bright skies, green grass, it will be there for you, just wait!

Love and hugs,

demi

xx



(p.s. if i totally read things wrong correct me)
 

Jim Bowie

Member
Can you even read books? Like paperback, black and white books?

Regardless, I'm so, so sorry, man. I wish you the best, and I sincerely hope that the cure comes soon.
 

demi

Member
I will play with my HDTV I cannot even watch, I will optimize the cables, so that all the consoles will be setup with the best cables, I modify my setup, I'm in the back of my tv with a gazillion cables, trying to build something. This kind of thing I can do, but I cannot bear watching the screen when the TV is powered on at all.

I tried to look at them, but I had presbitism and my eyes were hurt so I had to refrain. One day I couldn't cope with it anymore, I tried to read a magazine. It was the EGM with The Getaway: Black Monday on the cover. I could not believe it when I did not lost focus of my eyes, and I could read the articles! I kid you not, I cried tears of joy upon that magazine. I could read again, wow! I read the reviews and learned about games I had lost contact with. I read Seanbaby, and I laughed with good heartedness. I read every magazine I had as days went by.

I have a life in theory. I'm sure some philosophers would kill to be in such a state, but I'm just an ordinary man. I want to enjoy life, I want to go beyond the pain, the broken dreams that make for my daily bread, and still enjoy life. I achieve this, but I'm running all out of steam. Of course, going outside, playing games, listening to music, watching flicks, animé or tv shows aren't options for all I've said above. There is not much left.

I have photosensibility, so I virtually always stay home. I can tolerate the sun, but my retinas get burned quickly, and brings pain. I also cannot tolerate any video, animation, whatsoever, no matter how I view it. I have tinnituses, but they don't bother me. However, when I began the pills to make my tumor shrink after I changed treatments, I had severe hyperacusis. Hyperacusis is sensibility to sounds. If I ever listen to 10 seconds of music, I will get intolerable pain, pressure, and vertigo into my ears. And it will take hours to get away. I am sensible to extreme sounds. If a massive object falls on the floor above my head, I will get a similar sensitivity too. Imagine how fun a life it makes.

And with hyperacusis, I had to kiss my social life, and pretty much, my life goodbye. I feel like I live in a nuclear vault, like I am stuck in an Aquarium, seeing the world around me, trying to keep that out of mind but not being able to help it in the end. Since I cannot tolerate music, which is everywhere, I cannot go nowhere. I strictly only go outside to medical appointments (which I stictly administrate) and a few sporadical meetings with my family. Outside of this, I stay home, all the time. I just have to! Otherwise, it would be suicide for my senses. Remember guys, you sure have your ears and eyes fully intact, these are your most prized possessions.

Can you imagine a life with no video, no games, no music, no... nothing?

Some quotes to give you a better idea.
 

NohWun

Member
If you think you can't meet a girl, you're just not being creative enough.

Try libraries or museums or bookstores if the noise bothers you too much. Wear shades if the colors bother you too much.

Or heck, try online.

Whatever you do, just keep trying. Otherwise you're dying.
 

Jotaro

Banned
demi said:
I read your post.

Basically, to summarize for everyone:

His senses are fucked. Everything we enjoy in life, give him pain. Physical pain.

Hearing and Vision mostly I think.

He has a shit load of games (sounds like a nice collection perhaps from what he described), hoping that one day, a cure comes around for his tumor and such, and that he can finally enjoy what we all at GAF discuss and get banned over.

He has a crapload of magazines, but the colors and such hurt his eyes, like acid in a sense? But recently, he was able to read an issue of EGM, and he literally cried over it. I would too!

This giant blog post (which it is) is a story of how our good friend Jotaro wishes to stop living in his small, small isolated corner of the world and get out there and enjoy life like most of us do! One day, he hopes for a cure. Is there anyone who can help with his problem? Donate to the cause today.

I was somewhat moved, sorta placing myself in your position. It's like, ooo look at all these nice things...BUT YOU CAN'T TOUCH THEMThat sounds really, really shitty.

I hope you get way better! Bright skies, green grass, it will be there for you, just wait!

Love and hugs,

demi

xx



(p.s. if i totally read things wrong correct me)


No you did not really. Except, a cure is soon, but I do not really know when. I could get a surgery, or I could find the right dosage that would numb my nerves and give me my life back all out of the blue, but I do not know when. It's not "hope", I don't like to rely on beliefs, I rely on knowledge instead. :) Me reading the EGM and crying, that was not recently (it's me who did not put it clearly), it was nearly one year ago, so I've made my way since then. And I do not expect help to find a cure (I understand your cynism here;)), I just wonder if people could think of ways that, in the meanwhile, could just make my life happier, for which I am confident because of what I have read in the past.

This all might make me look like I'm handicapped, which I'm not, I'm like any average guy physically, except my senses are really fucked up, thus preveting myself to get most any enjoyment from my life. But it's not like if you have, say, a missing arm, in the sense that it's absolutely not visible from the outside. People are Thomases, they won't believe what they can't see, and that's what creates a shitload of incomprehension. Fortunately, some people are more open-minded than others. :)

Jim Bowie: I can, but really not for long. It's all about contrast, it will make my retinas hurt more easily. Something like say a magazine, there are colors and stuff, so it's like, I dunno, more balanced, and easy for the eyes. So it's quite the contrary of what you tought. Tricky, ain't it? Otherwise, I read on the web, I don't read much magazines right now because either the paper will appear too sharp, or too bright (because of the lights' reflexion), and it will glare me.


NohWun: that's creative, but unfortunately I've tought about it quite long ago. I do not go into stores, even most any public place, because something bothers me. Museums, there are none in my city, bookstores and libraries, well there's not too much noise, but there's echo. I remember when I was in a church in my hospital hoping to find a place to rest, and I wanted to give some money to charity. I remember unzipping my wallet, and then noise propagathing to the whole chapel. So I got out, quickly. It hurt a little, but in the end when I recall it today that makes me laugh. :lol

And sunglasses, well, that makes the problem worse because my retinas burn quickly (fortunately my eyes are physically intact), that creates contrast, and I have this weird presbitism problem, so it's not even worth a shot. Thanks for trying, tough. But meeting a girl, that's not a high priority for me right now, because I would need more of a presence than anything else. And maybe I'd find it all superficial, which I hate. I am always grumpy, am I not? ;) I'm really always trying new things, because else I would be dying, you're right on this. :)

Oh, and sonarrat I read your original post, that was nothing. Don't go overboard with it everyone , I've seen much worse. ;)

Everyone, please read at least a good bunch, or do not post at all. And like I said, if you feel sorry, well, when you play Halo 2, blast some Covenant ass for me. ;)
 

Do The Mario

Unconfirmed Member
I seriously cried when I read your thread.

I haven’t quite finished it yet but I potentially got a few ideas for you


Why don’t you get a dog as a companion? Maybe you could walk it when it’s quite in evening teach it tricks mote important have company etc..

Maybe you will meet a lady when walking the dog, I generally see the same people regally when I got jogging with my dog and sometimes you get quite friendly with some of them.
 

Karg

Member
Do The Mario said:
I seriously cried when I read your thread.

I haven’t quite finished it yet but I potentially got a few ideas for you


Why don’t you get a dog as a companion? Maybe you could walk it when it’s quite in evening teach it tricks mote important have company etc..

Pets can work wonders...until they bark (EDIT) :(
 

Do The Mario

Unconfirmed Member
Ecrofirt said:
they can also bark very loudly, and probably cause him enormous pain.


My dog can’t bark only howl (which is much gentler). Just find a breed that isn’t talkative or do some simple training to stop your dog barking.

At one year old my friends dog never barks only if someone is at the door (it’s trained).
 

Jotaro

Banned
Do The Mario said:
I seriously cried when I read your thread.

I haven’t quite finished it yet but I potentially got a few ideas for you


Why don’t you get a dog as a companion? Maybe you could walk it when it’s quite in evening teach it tricks mote important have company etc..

Maybe you will meet a lady when walking the dog, I generally see the same people regally when I got jogging with my dog and sometimes you get quite friendly with some of them.

I hope you cried not too much. :)

Of course that's great, and I tought about it, but I cannot. A dog, I could not take care of it. I do not go outside at all, I "can" do it, but it costs so much and it's so imponderable it's not even worth a shot.

Yes, the penumbra is the best time for me to get outside, but that's still not good enough for my eyes unfortunately, at least for walking. It can never be too quiet, there are always cars moving in the background, I live near a superhighway. It would be great to have a dog, I had one and I really miss it really much, it was a life savior like you said, but he's dead. Now, I could not take care of it even outside. I asked some people to bring in their dogs so I could pet them a little. Unfortunately, dogs are barking and thus make too much noise, plus they would demand too much care for my means. Something like a fish, a turtle, a hamster, my brother brought me some, but that does nothing to me, it's just some clueless living being in a cage. That, and I still have some problems, and if you have an animal, you cannot give it away suddenly because you feel like it. That's something I would never tough, at least. A cat would be the next best thing, but it's still noisy, I want it but my ears won't listen. ;)
 

Jotaro

Banned
Do The Mario said:
My dog can’t bark only howl (which is much gentler). Just find a breed that isn’t talkative or do some simple training to stop your dog barking.

At one year old my friends dog never barks only if someone is at the door (it’s trained).

I know there are races that do not emit sounds at all, but still I cannot take care of it by myself. A cat I could, but such things do not exists, those high-pitched moanings fry my ears. It's not possible to know in advance what it would do to me, each pet is different, and I do not know what could happen in the long run. Since I cannot go to petshops, or keep a pet very long, how can I know if it would do me good or not? Once again, prudence must prevail. ;)

karg, editing your post like this a little, I found it going too much overboard, I'm not made out of glass dude. ;)
 

Scrow

Still Tagged Accordingly
demi said:
I read your post.

Basically, to summarize for everyone:
even your summary was too long to read. could i just get a rating? like a C- or something.
 

Do The Mario

Unconfirmed Member
Jotaro said:
I know there are races that do not emit sounds at all, but still I cannot take care of it by myself. A cat I could, but such things do not exists, those high-pitched moanings fry my ears. It's not possible to know in advance what it would do to me, each pet is different, and I do not know what could happen in the long run. Since I cannot go to petshops, or keep a pet very long, how can I know if it would do me good or not? Once again, prudence must prevail. ;)

karg, editing your post like this a little, I found it going too much overboard, I'm not made out of glass dude. ;)

Maybe you should consider moving somewhere less busy out into the country side, I mean you will obviously need access to a city centre for medical reasons but maybe if you lived somewhere with less “hustle and bustle”.

Maybe then you will be able to go out more have a pet meet other people in a tighter community.

even your summary was too long to read. could i just get a rating? like a C- or something.


A+ Read it
 

Jotaro

Banned
Do The Mario said:
Maybe you should consider moving somewhere less busy out into the country side, I mean you will obviously need access to a city centre for medical reasons but maybe if you lived somewhere with less “hustle and bustle”.

Maybe then you will be able to go out more have a pet meet other people in a tighter community.


I've made too much work to get a good place to live on my own, so it prevails on the rest. ;)

Do The Mario said:
A+ Read it

That is, if my essay's not rejected for being five times longer than the maximum limit. :lol
 

Acrylamid

Member
Jotaro said:
Fortunately, I can still use the Internet. I do not visit a lot of websites, most of the times, the colors or patterns, the fonts will bothe me too much. GAF, I can but not too much, the fonts are not right enough. I tried everything to adjust settings better, but I cannot read too much. I read tons of intelligent discussions, and I enjoy all of this. But I also have to skip tons of discussions, that I really miss.
Do you use the Opera browser? It has an "User mode" that converts websites into standard design (Times New Roman, black on white, etc. ).

edit:
Jotaro said:
Jim Bowie: I can, but really not for long. It's all about contrast, it will make my retinas hurt more easily. Something like say a magazine, there are colors and stuff, so it's like, I dunno, more balanced, and easy for the eyes.
Sorry, didn't read this before I first posted...
But you could change the standard background color for User mode to grey if that would help.. ?!
 

Jotaro

Banned
Acrylamid said:
Do you use the Opera browser? It has an "user mode" that converts websites into standard design (Times New Roman, black on white, etc. ).

No, I am stuck with Interweb Explorer. :(

I would really like to use browsers such as Opera, and especially Firefox, but it's worse because I cannot cope with the interface of these at all. I tried everything I could to adjust them, I was not able to and always went back to IE. So it's making things worse. I know there are programs like Proxomitron and stuff, but I'm clueless on how to make them work to my liking, which is a very niche liking to say the least. ;)

One thing I tought about was playing text-based games. Unfortunately, I've tried alot, but I then again cannot cope with the interface whatsoever. That would be great if it worked, but I can't use them. So I wonder, are there any of these great text-based games, especially adventure games, that would work as bots with MSN Messenger? If it could work out, that could help me feel a whole lot better. :)

Some problems I have is that some fonts and colors people use bother me, but I try to get around. I don't want everyone to adjust to myself. So it's nice, but some people I cannot talk to because I cannot bear reading the font. I use (must use) MSN Messenger 6.2, it's the only interface I can tolerate with ease.

I've tried older version, and the latest (and cluttered) 7.0 build, but they are useless. Of course there are other programs that let you access IM protocols, including Trillian, but I cannot cope with their interface again, so I got back to Messenger 6. I wonder if there would be a way for me to customize what I get in my inbox with MSN 6.2 specifically. I like Arial 10 without styles, but I cannot find a way to standardize this as for others. It's possible with other programs, but they make things worse as I've said before. Could that specific customization be somehow possible?

Anyway, if you feel bored and want to talk to me, my MSN Messenger handle is in my profile, and I always appreciate interesting people and conversations, that's for sure. :)
 

Jotaro

Banned
Acrylamid said:
But you could change the standard background color for User mode to grey if that would help?

No that would most likely not help at all. You change a little detail, problem is, it's all meant to fit together nicely. So when I try something like that, everytime, all the rest is more striking and makes things worse.
 

demi

Member
Scrow said:
even your summary was too long to read. could i just get a rating? like a C- or something.


man your face is a c- ! TOO LONG TO READ C- SCROW'S FACE YOU READ IT HERE
 

Rei_Toei

Fclvat sbe Pnanqn, ru?
Jotaro, I have no idea if I can help, and I don't really know how te respond to your story here, but I'll add you to my MSN so we can have a talk, if you'd like. I'm not gonna be online much for the coming days because of bronchitis (shouldn't be behind the screen too much) but usually I'm around fairly often.
 
F

Folder

Unconfirmed Member
Hey Jotaro.
Good luck with everything mate, really.
:)
You have a great attitude. That's essentially the start of anything good.
Again, good luck, you seem liike a great human.
S
 

8bit

Knows the Score
Jotaro said:
So I wonder, are there any of these great text-based games, especially adventure games, that would work as bots with MSN Messenger? If it could work out, that could help me feel a whole lot better.

There are. I don't know if they still exist though.

"The system works by having an AIM user send a message to either InfocomBot or InfocomBot2. The bots then prompt the user to type the name of the game they want to play. It's quaintly reminiscent of War Games."

http://www.wired.com/news/games/0,2101,62791,00.html
 

Jotaro

Banned
Well, it looks like it is only going to work with AIM because it can deal well with commands and I never was able to use that program or something like Trillian, too bad.
 

jenov4

Member
Jotaro, tough break man. I'm sorry to hear about your situation. That must really blow, but at least you can get on the internet and use the PC in some fashion.

If you're looking for a text based client, I suggest you have a look at Bitlbee which is a sort of gateway that connects to the popular IM protocols out there. Once you got that connected, you can use a console based irc client (I prefer irssi myself) to connect to your local host and have chat sessions via IRC. It's really neat.

They even have public servers if you don't want to install the software.
 

Pochacco

asking dangerous questions
*bump*

What you wrote was really moving.
I can't imagine being in your shoes. It makes me realize how many things I take for granted. But still, your attitude and patience toward it all has been great :) Hang in there - I'm sure you'll be rewarded one day :)

Sorry to say, I don't know what to recommend. I think a cat would be a nice idea. A trained one would be whisper quiet and would be easy to take care of. Maybe ask your family to help find one?
Reading is always there. I know that if I had a lot of free time, I'd catch up on some books.
If it hurts your eyes, would audio books be an option?
Art is fun. Sketching, watercolors, acrylic paints, etc. You don't have to be a pro. I know I'm not - but I still find it very relaxing and rewarding.
Social contact is important. Invite your family to come over more often - ask them to bring friends, etc. Have dinner together. When I'm feeling down, I can always fall back on family.

Best of luck =)
 
D

Deleted member 1235

Unconfirmed Member
I don't quite understand what you said about surgery, can you get it removed? Shouldn't you make that your priority in life? That's what I would do. Sorry if I misunderstood and you can't do that.
 

Jotaro

Banned
catfish said:
I don't quite understand what you said about surgery, can you get it removed? Shouldn't you make that your priority in life? That's what I would do. Sorry if I misunderstood and you can't do that.

I can get it removed, but I had an MRI, and I have to wait so that the neurosurgeon I deal with has enough time to read the radiologist's report and view the films so whether or not he decides I must take Dostinex for another six months or do a nasal operation. There people are filled with requests and lack means, so I cope with them (the one I'm dealing with is great), but some people that deal with them seem to be paranoid (the tumor presses on my hypophysis, which is REALLY fragile) as like a surgery would fuck me up, but they don't know jack and they seem inclined for me not to have a life to live, an house, found a family, buy a house, finnish College, settle down and play games, enjoy life.

So I funk them up their asses and I want to get through. :lol

Meanwhile, with my physician, who follows the recommendations we made in the neurological center, we try to numb my nerves and kill the neuropathical pain, we don't know if that's the tumor or the neuropathical pain that causes this. He's a great doc, but he's clueless, so I HAVE to guide him. I can truly say Google is my best friend. ;)
 

Jotaro

Banned
Pochacco said:
Sorry to say, I don't know what to recommend. I think a cat would be a nice idea. A trained one would be whisper quiet and would be easy to take care of. Maybe ask your family to help find one?
Reading is always there. I know that if I had a lot of free time, I'd catch up on some books.
If it hurts your eyes, would audio books be an option?
Art is fun. Sketching, watercolors, acrylic paints, etc. You don't have to be a pro. I know I'm not - but I still find it very relaxing and rewarding.
Social contact is important. Invite your family to come over more often - ask them to bring friends, etc. Have dinner together. When I'm feeling down, I can always fall back on family.

Best of luck =)

Thanks for trying, but unfortunately no such luck. Books, I've overused them, I have to refrain a little. Audio books, with my extreme hyperacusis, would be a killer also, I cannot bear any sound coming from speakers. Even with the phone (thank god I can use it), when I wait to bitch on dvdlate.com about why my damn order has not shipped yet, if there's music, I have to take away the phone and try to guess when it's over. It's not bad, but I can't bear it at all.

If I'd listen to music, one song would be like you going to see Metallica Live in some Huge Arena, the tinnituses, pressure, and ear sensibility, and pain, would be the equivalent of that, for 3 minutes. At some point I tried to listen to music. That lasted days and I almost wanted to take pills to sleep for days (I did not in the end thank god). Something like that would not be tolerable. At least I read plenty of article online, but I'm tired of theory. I'm tired of seeing stills of upcoming games, I want to play Dragon Warrior 8, how soon is now? Art, with my presbitism and chromasensibility problems, is not an option. I'm not that sensible to colors, but sometimes something will get triggered and I will be sensible (mostly to that specific color) for some time, with nothing to do about it but waiting.


As for my family, I've discarted them, I had no choice. I could not deal anymore with a numb and hateful 14 year-old little sister, a mother who would get mad out of the blue for nothing and always blame me (I'm already sick enough), and worst of all, a nihilistic and egoistical, not to mention sadistical little brother, who studies drums, and was beginning to torture me (I kid you not) with his instruments and sound sustem when I'd disagree with him. So that was for the best. But my brother damn, I still have chills when I think about his hatred towards me. :(

The rest of my family is either out of my town, or has got no time to come to see me. As for my family, I know that no one will go, leave them home and come to help me, I cannot really rely on anyone but myself. When they will come to ask for help, I will tell them to funk themselves, I owe them nothing I guess, but it's sad. :( Fortunately, I have my other brother who's extremely busy but more mature and friendly, and my father who works foreign but who still cares for his elder son. :)

Friends, I already said, they're gone, I can't go out and make new ones. People out of town have no time nor means to come to see me.

Voltaire said that the best if the enemy of good. So that 's what I do, but GODDAMMIT, it's hard. I'm tired to wake up alone, wander around my place alone, sit on my computer alone, I barely speak with anyone. Sometimes someone will call and I'm amazed I still talk. I feel like an android. I'd like to rely on experiences rather than my memory. Damn. :(

I'm not made out of wood. I cry because I have no sweetheart at the side of my bed. I cry because I'd like to feel like a man. I cry because at night, my lips will feel my wraps, that will make me think of my ex-girlfriend, I will get sad, they move but only to being itch by the tissues, my hands will wander to no end, and can't help it, and they will close themselves against emptyness. How pathethic. But, would I commit to a girl in the same situation as myself? Probably not. So I have to understand others. I'm not damned, but I can't help but wonder, why me?

Jenov4, I didn't tried your solutions (nor others' similar workarounds) as of yet, I'M really tired, and it's cold as hell in there, thank you very much nonetheless, I bookmarked these.

Thanks anyway, it seems I'm patient like Job in the bible. ;) and Rei_Toei, thanks for adding me to you MSN, I really appreciate. You know, sometimes beneath the happiest face will lie the deepest sorrows. But I'm still amazed on how I can, again and again put up a brave face. :)


Oh, and how many opponents did you frag for me? ;)
 

Chrono

Banned
Sorry man. :(

I don't know what to say, but to wish you luck.

Don't forget to update us if you have an operation or something like that!

Jotaro said:
As for my family, I've discarted them, I had no choice. I could not deal anymore with a numb and hateful 14 year-old little sister, a mother who would get mad out of the blue for nothing and always blame me (I'm already sick enough), and worst of all, a nihilistic and egoistical, not to mention sadistical little brother, who studies drums, and was beginning to torture me (I kid you not) with his instruments and sound sustem when I'd disagree with him. So that was for the best. But my brother damn, I still have chills when I think about his hatred towards me. :(


God you should fucking kill him; when you're cured make sure to at least land a good one right on his face. :mad:
 

FightyF

Banned
As for my family, I've discarted them, I had no choice. I could not deal anymore with a numb and hateful 14 year-old little sister, a mother who would get mad out of the blue for nothing and always blame me (I'm already sick enough), and worst of all, a nihilistic and egoistical, not to mention sadistical little brother, who studies drums, and was beginning to torture me (I kid you not) with his instruments and sound sustem when I'd disagree with him. So that was for the best. But my brother damn, I still have chills when I think about his hatred towards me. :(

Where in Canada do you live? I can beat up your brother, for free!

Seriously though...if I were to put myself in your shoes...the first thing I'd do (which could probably be a waste of time) is to write something for the local paper, in order to bring attention to this issue. I see an issue at hand, that would piss me off if I were in your shoes. You are living a nightmare in many ways, and the bueraucracy of today's healthcare doesn't help you at all. I'd talk about the incompetance of doctors, the lack of them, the lack of funding, etc.

With your post, you've convinced people like me that something needs to be done, perhaps something like I suggested would garner more attention in order to push for more attention to something so serious.
 

etiolate

Banned
How can you stand to stare at a computer long enough to write these long posts?

Anyways, someone who is basically allergic to media in today's world of mass media would make an interesting story. Perhaps you could write your expereinces down as a way to fill your life, or perhaps get someone else to. It's an interested setup and contrast to build upon.

And if you want a quiet pet then get a chinchilla.
 

Pochacco

asking dangerous questions
Fight for Freeform said:
Where in Canada do you live? I can beat up your brother, for free!

Seriously though...if I were to put myself in your shoes...the first thing I'd do (which could probably be a waste of time) is to write something for the local paper, in order to bring attention to this issue. I see an issue at hand, that would piss me off if I were in your shoes. You are living a nightmare in many ways, and the bueraucracy of today's healthcare doesn't help you at all. I'd talk about the incompetance of doctors, the lack of them, the lack of funding, etc.

With your post, you've convinced people like me that something needs to be done, perhaps something like I suggested would garner more attention in order to push for more attention to something so serious.
I second this.
Not only will it be a good cause, but it should keep you busy :)

I'm sorry about your family - that's terrible.
Chinchilla's are really cute...
 

Jotaro

Banned
etiolate said:
How can you stand to stare at a computer long enough to write these long posts?

Anyways, someone who is basically allergic to media in today's world of mass media would make an interesting story. Perhaps you could write your expereinces down as a way to fill your life, or perhaps get someone else to. It's an interested setup and contrast to build upon.

And if you want a quiet pet then get a chinchilla.

Well as for writing those posts, I do not stare at my monitor other than sporadically (that is, while writing), I stand my eyes somewhere else (while being in front of the monitor) while sporadically looking at the monitor. Then I post, and I can look and quickly edit some typos. But in what I write you will find letters inverted here and there, and also redondance, because I cannot edit my texts at all when writing, and barely I can change some small things when it's posted. I do not watch the screen much! I was able to speak and write perfectly good english, but I have this problem. I'm not bad, am I? ;) When I began to type again, when I could not even watch my monitor, neither my keyboard, I had my keyboard under my wraps, linked via USB towards my computer which had it's monitor closed, and I would type coherent sentences. With some gibberish, but I learned to fine tune everything. And of course, to learn keyboards commands to save my writings, stuff like that. Like a geeky McGyver. ;)

I don't want this kind of attention or media stunt. First, I'm very far from being the first one about doing the kind of things you mentioned, and secondly, I don't want to be tagged, I will be just a normal man after that. When it's done (it'll be), I have my new life, perfectly good life.

I do not plan to only turn over the page, but also all of the book. And to burn it to ashes. And to beat the ashes to death, and to give them in some church so that a priest can bless them, and then to put it away forever. Understand my point? :lol

Of course I could do this, but you understand I don't feel like it? besides, I cannot look at what I write much, I do not read long (and dense) texts much because they stress my eyes. Worse, as for what I write, since I cannot read myself back much, well I'd lose myself, I'd be redundant and forget everything I'd have written. I cannot do much more than what I do right now. I also pretty much just want to write about things I like, things that will distract me from this horrendous saga. :)

About my brother, when he came to me and broke my HDTV's remote control because he felt like it, his oh-so precious sound possessions also suffered, then asta luego! :lol
 

junkwaffle

In Front and Drawing Away
Meanwhile, with my physician, who follows the recommendations we made in the neurological center, we try to numb my nerves and kill the neuropathical pain, we don't know if that's the tumor or the neuropathical pain that causes this. He's a great doc, but he's clueless, so I HAVE to guide him. I can truly say Google is my best friend. ;)
Hey, Jot. I know this kinda sucks, but if you have any kind of money, I would consider coming down to the US for treatment. It may be expensive, but the doctors here, (esp. near the big cities) are world-class. Specialists are the norm in this system. Your condition requires top shelf treatment, dude. Just an idea. I would make it a priority.


Btw, I have a new thought about your Dad stopping gaming, but we'll discuss that at another time. I read your whole post, Jot, and I just wish you all the best. Good luck.
 
D

Deleted member 1235

Unconfirmed Member
junkwaffle said:
Hey, Jot. I know this kinda sucks, but if you have any kind of money, I would consider coming down to the US for treatment. It may be expensive, but the doctors here, (esp. near the big cities) are world-class. Specialists are the norm in this system. Your condition requires top shelf treatment, dude. Just an idea. I would make it a priority.

I really second that, i'm from NZ but my dad is dealing with a grade 4 GBM on the speech centre of his brain, I'm sure since you have a brain condition you know what I'm refering to esp if you've been hitting google, The American brain doctors really really know what they are doing and as for his progress, the doctor is pleasantly surprised at how well the leftovers are no longer growing. Seriously, get it removed from your head, I mean, if you suffer some lasting effects, well that's going to be no different than what you have now anyway.

have you determined it's not malignant?
 

Jotaro

Banned
It's non malignant, the kind of pituitary tumor I have never is.

Of course there's money, but it's just one out of many other reasons moving to the US for a surgery is never gonna be an option. Think of what I typed, and let your imagination run wild. ;)
 
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