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Living with a chronic pain suicidal SO Pt.2

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Bebpo

Banned
So I posted a thread about my fiance a few months ago and some of her first suicide attempts because she has chronic back and neck pain from a car accident almost 2 years ago that she can't live with and can't get help because doctors don't believe her.

Thread Pt.1: http://www.neogaf.com/forum/showthread.php?t=833290

I was always there giving her full emotional support and trying to help as much as I could and then some, and a month after she got out of her clinical depression and though she was still in pain all the time, she was getting out, spending time with friends and happy, optimistic and coping.

Then in mid-August we were on a vacation and she had a grand-mal major 3-4 min convulsions seizure because of a pain medication she tried (Tramadol while being on Prozac + some coffee that day) in order to conserve her minimal vicodin prescription. This was her first seizure and it fucked up everything. The muscle soreness from the convulsions and falling on the ground caused her pain level to elevate to the highest it'd be in the last 2 years. She had to go from taking two 5mg vicodin/day to six per day to get through the pain. But burning through the prescription at 3x the amount prescribed was not going to lead to a good place.

Well she saw some docs and got an appointment with some pain doctors in the hopes one would be able to help her. Got her hopes up. One doc's first opening was a month away, one was a week away. She had 1.5 weeks worth of prescription vicodin left. She pinned all her hopes on the earlier one that had been recommended by a local doc as a very understanding and helpful pain doc.

In prep for the appointment and since I can't be there due to work, I work with one of her gps whose known her a while to produce a detailed 4 page "medical evaluation letter" signed by the doctor explaining the long history of her medical stuff since the accident because her injury is one of the 10-20% of injuries that don't show on the x-ray/mris (and why so many doctors had not taken her seriously and even accused her of being a drug seeker)

She goes and sees the doc and he's not there so they put her with his assistant. The assistant looks at her x-rays and mris and says she seems like a normal 21 year old girl, here's some tramadol. She says "did you even listen? Tramadol was what gave me a SEIZURE" and he's like oh whatever, here's some advil++, your test reports look fine. And she tells him of her suicide attempts, of having to take 11 extra strength tylenol at a time to even make a dent on the pain, of not sleeping, etc...she's like it's all in this doctor letter I gave you and...he doesn't even read the letter! He says he's not giving her narcotics because she's young and looks healthy to him and he literally walks out of the office.

[From what I've been able to figure out the cause of her chronic 11/10 constant pain is:

1) A bad whiplash healed improperly neck injury with reversal of the curvature of her neck spine along with shortening of her neck muscles which can be healed through physical therapy but since she's in so much pain she needs pain killers to even do any PT; and

2) her back pain which is even worse is likely Myofascial pain syndrome of a excruciating muscle knot in her mid-back near her spine that probably needs trigger point injections -> physical therapy after the knot has loosened and maaaybe even a good trigger point acupuncture could help loosen the knot.

But no doctor's been able to diagnose #2 and #1 they just say do PT but she can't without at least 1 pain killer before PT to be able to do the exercises, 1 after for the immediate pain and 1 at night to sleep and no one is willing to prescribe her 3 a day for a few months of PT.]

Anyhow, after having gotten her hopes up, been almost out of pain killers and in heightened pain from the seizure (plus the doctor squeezed on the trigger areas causing a flare up of even MORE pain), and the mental defeat of another doctor not believing her because she's young and looks generally ok in her xrays/mris and another doctor accusing her of just being a druggie...she gave up completely. She fell back into a depression, gave up on believing she'd ever get better or anyone would ever believe her and was really wanting to die. Instead to get through the night of intense chronic pain (since she couldn't sleep from it) she cut up her wrist with a knife so at least she could focus on her wrist pain and for once not be focused on her back/neck pain. Also she wanted the natural endorphin pain killer effect from a wound.

That was bad.

That was Tuesday.

Wednesday and Thursday were really hard (she'd stopped cold turkey even taking her last handful of vicodin because she didn't know if she'd ever get anymore, plus she hated herself and her life at this point and wanted to try to endure the pain). She hardly slept more than 4-5 hours a night, was crying and crying in pain screaming all night. But during the day she'd get out, be social and her mood was good. She hadn't fallen back into a clinical depression thankfully and she was fighting.

Oh and we got rear-ended on Wed night (light impact, about 10mph, but still enough for me in healthy condition to have a sore neck/back for a couple days), which of course just made her pain even worse.

Friday (yesterday) was just bad. Either the rear-end aggravated her injuries or her tossing and turning in her sleep the night before, but she was in excruciating tremendous pain and she just couldn't take it. She decided she was either 1) going to kill herself by smashing her car into a wall, 2) was going to throw herself down a set of stairs so she'd finally have something that would show on x-rays/mris or 3) was going to drive at 3am to the seediest part of town and look for drug dealers to see if she could buy pain killers off the street since doctors won't help her. I spent hours all night/morning blocking her physically while pleading with reason and logic and trying to be supportive and asking her to hold on and not give up.

Eventually I succeeded but she was in so much pain and broken she went into bed and called the suicide hotline for the first time. Told them her story and asked what she was supposed to do living in chronic horrible pain that's not visible from just looking at her or in her xrays/mris and no doctor believes her and every night she doesn't want to wake up in the morning. They tried to be helpful but there's no much they can do. I was holding her the whole time but when they asked if there was someone there who cares for her she said "There is but I don't want him to be involved. He's missed so much work and I'm making him miserable and ruining his life" (and I was giving no, c'mon that's not true signals).

She gave the hotline an ultimatum, she'd be dead at the end of December when the year ends unless she miraculously got better.

The thing is, she doesn't bluff. She also said if she gets committed to a psych ward or institute she'll find a way to kill herself and I know she will.

Since I couldn't do anything about the December suicide deadline (no pressure, right), I was like at least don't give up, see doctors, try everything, TRY until then and she's like "no, I'm not seeing anymore doctors or trying anything else; every time I see them they never believe me and it hurts so much and everything they give me doesn't work for the pain and only gives me bad side effects like hallucinations or seizures. I mean the medication THEY gave me gave me a seizure and caused my pain to now be as horrible as it is" and I ask about 4 months then and she says she decided December so she has time to sort out all her stuff before she kills herself. She's given up and knows she's not getting better.

She passed out a bit after that.


She has an appointment with a pain doc on Wednesday. It was the highly recommended guy she was going to see when she got the assistant. The doctor who referred her to him said it was bad luck that she got the assistant as the assistant is new and very strict and that the doc would talk to the good pain doc about her case and clear things up. But she was still worried the assistant will poison the well and tell the guy that she was just another drug seeker with nothing wrong. I'm going this time to be there. I've taken videos and audio when my fiance wasn't looking at times while she's been breaking down crying and suicidal because the pain hurts so much so I can show the doc. But right now the hard part is 1) Getting her to make it until Wed, 2) Getting her to GO to the appointment.

And then if he doesn't want to help her (apparently the doc referring said because of a brand new drug law upping the classification of vicodin from class 2 -> class 3 drug, it's now getting hard for a doctor to prescribe it so even if he's sympathetic there's only a 60% chance he'll prescribe pain killers to help her get back to physical therapy and to manage day to day)...well if it doesn't go well there's another appointment in like 3 weeks but I don't even want to think about her surviving until then.

Despite her December deadline, the matter of fact is that each night without pain medication she literally just can't survive the pain. She crawls into a fetal position and just cries and hurts all night and thinks about suicide until maybe she passes out at 5-8am for a few hours.

She was talking about driving to Mexico on her own to see if people in that country would be more sympathetic and willing to help her. Needless to say, I don't think this is a good idea or would even work.

I'm really at a loss on what to do here. She's trying to be cold and push me away so I'll leave her and she can just kill herself, but I'm gonna do everything in my power to prevent that from happening. I'm thinking about taking a 3 month sabbatical from work to do everything I can and try to stop her from suicide. I'd call 911 when she attempts but she is so stubborn and prideful that I really belief her when she says she'll kill herself if they put her in a psych ward or mental institution.

I love her so much and she feels the same. When she at least HAS pain meds she can function and live a good life while coping with moderate but not soul-destroying pain. But without pain meds she can't even think because she's in so much pain and it's constantly in her mind, which is why she goes crazy like last night. She just can't think straight in this pain and can only think about dying to end the pain or getting pain killers to stop the pain.

I feel like it's wrong-time, wrong-place. With celebrity deaths like Phillip Seymour Hoffman and such, the government/DEA is tightening the grip more and more and pain killer prescriptions so doctors are afraid to prescribe them and when you're young and one of the 10-20% of muscle/nerve type odd injuries that don't really show on standard tests, well the docs say "sure you say you're in excruciating pain, but you're young, get some exercise and you'll be fine" and then they kill themselves.

Being completely open and honest here: I don't want my fiance to die. She's the most brilliant, hilarious, fun and amazing person I've ever known and I can't wait to spend the rest of my life together with her. I want to grow old together. I don't know what to do. I have 4 months, or more likely about a week or two.
 
On the face of it, I don't really know what to say Bebpo, nothing but sympathy, really.

But yes, you need to take the sabbatical. Right now. Your job is to get her through it and steer her through the whole doc thing. Forget the work wheel and deal with what's important to you.

I've been through similar asshole doctors. One was the nicest guy who would gladly hear me through and then write up a file saying it was mostly psychological (rather than the other way around). The other is basically a real life Dr. House who couldn't give a shit what I think or ask (and has told me in those words), but does all the labs and considers every medical factor first. Suffice to say, this is why you need to get her the second (or third, or fourth) opinions and back it up with evidence, as you seem to have. These guys and girls run off evidence, and "it hurts" doesn't always count for much.

The thing that was important to me was a plan. Maybe not a long term plan (doctors rarely want to give that) but a next step. Meds are just a stopgap measure between steps, so the goal is what you need, whether its another MRI or another specialist, etc.

Beyond that, you pretty clearly need support too if you want to get her through this. Not sure if it's a nurses/doctors hotline, or the suicide hotline, the mayo clinic, or what, but you're the coach now, and your patient is going to beat you down mentally too.
 

SgtCobra

Member
Lots of people don't realize it, but chronic pain can be something nerve wrecking and can even give the "strong minded" people a very hard time coping with it.

You need to help her with finding some serious medical assistance, not some average Joe doctor because most of them don't know how to deal with people who have chronic pain. When they can't figure out why somebody has pain they will use the "it's all between your ears" card or they will prescribe some painkillers, and those things shouldn't be the answer. Try searching for some special clinic who is specialized in her problems, it might be expensive but you pay for what you get... At least, I hope so.

Another important thing, and I know it's very hard is to also help her seek mental help. It's not the cure she is looking for but thinking about the pain 24/7 may make things even worse. It's very difficult to shake off those feelings of insecurity and despair (because that's a big part of what may drive people "insane" - the thought of never functioning normally again)

The word we should focus on is "initiative" you both need to take some serious action to let the symptoms decrease or even disappear. I don't say you guys aren't doing your best but this is a severe problem. Try to do what you can for her and take her to different clinics with people who take their job serious and not like that piece of shit of your last thread.

If you can't use the help of her family to comfort her then be the one she needs and do everything you can to help her (something which you may be doing now already though)
 

Bebpo

Banned
Is it worth stressing to doctors that she's suicidal? Imo as a medical layman that is pretty strong evidence that her pain is a severe issue and the doctors need to take her seriously asap.

Otoh, I'm worried they'll be like "oh, then she should be in a psych ward, not my office".

My fiance told me that if I told any doc she cut her wrist they'd be forced to put her in a psych ward.

For myself, yeah, this has been incredibly stressful and hard and I don't wish this on any other person. My parents are my support outlet I guess.

One thing I'm worried about is if I take months from work, my fiance will blame herself for it and feel even more guilty and depressed.
 

Bebpo

Banned
I agree that pain killers aren't the answer and they'd made this whole thing worse as I feel like they've decreased her pain tolerance to make her injuries even more and more painful without them.

But at the same time she can't live with the pain (literally) at the current levels and OTC just isn't strong enough.

I think the solution is she needs a doc to prescribe them for a few months short term to get her through some major therapy, injections and then taper off.

She already has a psych and is on the max anti-depressants, anti-anxiety (she was on it before the chronic pain, so can't go any further to combat the new stress it brings). Her psych has been with her a long time and is very sympathetic but he's not a pain management doctor so he can't help much with the pain and rehabilitation. Her current pain and rehab doctor is terrible and keeps cancelling her appointments from being out of the office and she sees her once every 3 months, gives her a little vicodin prescription and says "work your muscles at the gym" she is kind of terrible and has made the situation worse.

The doc in 3 weeks is a high rated pain and rehab doc to try to switch over, but it takes so long to get appointments with the better rated docs and every day is a challenge.
 

jwk94

Member
I'm not a doctor but doesn't the brain react a certain way when you feel pain? Couldn't they hook her up to something to monitor her brain waves and see she's telling the truth?
 

Tugatrix

Member
How long since the X rays and MRI were taken? First some things are difficult to spot through those exams, also some problems like that take time to provoke damage on the bones, so a more recent MRI or X ray may now reveal the problem.

Hang on in there and I will just suggest this without knowing you possibilities, try to seek medical help outside the US.
 

Bebpo

Banned
How long since the X rays and MRI were taken? First some things are difficult to spot through those exams, also some problems like that take time to provoke damage on the bones, so a more recent MRI or X ray may now reveal the problem.

Hang on in there and I will just suggest this without knowing you possibilities, try to seek medical help outside the US.

Been about a year since MRIs/xrays. I keep thinking new ones would be good, especially if the seizure caused additional damage that would be visible. Problem is really cost since insurance won't want to cover new ones and on a lien they charge like $4,000 each MRI.
 

Bebpo

Banned
I'm not a doctor but doesn't the brain react a certain way when you feel pain? Couldn't they hook her up to something to monitor her brain waves and see she's telling the truth?

Maybe a neurologist could see this? Been trying to get her to see a neuro since her seizure two weeks ago.
 

A Fish Aficionado

I am going to make it through this year if it kills me
Some antidepressants and anti anxiety drugs lower the seizure threshold.

Finding a good chronic pain doc is hard. Don't give up.
 

Bebpo

Banned
The hardest part though is going to be getting her to be willing to go do anything if she's given up and just getting focused on suicide.

I don't even know what is going to happen when she wakes up. I can't sleep.
 

Kilrogg

paid requisite penance
Sorry to hear that.

I've skimmed through your post and I don't think I've seen any mention of it, so here are my 2 cents:

If traditional medicine and doctors won't take her seriously (or just lack the tools to identify and cure whatever ails her), you should look at alternative solutions. I know, I know, you could find people who don't know what they're doing, but you could just as well find this one Chinese medicine practicioner who would do wonders for her. You could start with a fairly recognized field like acupuncture or osteopathy. More generally, medicine that deals with touch, massages and physical manipulation might help her. For instance I know people who've been to a very skilled reiki practicioner and it helped their back pain much more than regular doctors ever could.

Just avoid stuff that's really out there and claims to be revolutionary.

Regardless, how shitty a doctor are you when you don't even want to believe your patients? It's one thing to be skeptic or admitting you have no idea what's wrong, but this? Really unprofessional and insensitive.
 

SgtCobra

Member
Maybe a neurologist could see this? Been trying to get her to see a neuro since her seizure two weeks ago.
I advise you to see a neurologist, that's the initiative thing I'm talking about. Maybe he'll find something, you may never know.

The hardest part though is going to be getting her to be willing to go do anything if she's given up and just getting focused on suicide.

I don't even know what is going to happen when she wakes up. I can't sleep.
She needs to take the right steps to help herself get through this, you're a key figure in doing this. You guys haven't tried everything there is to solve her problems yet, so it's far from "over".
 

TEJ

Member
I don't have any practical advice but you're awesome for being there for her. Never, ever give up hope.
 

A Fish Aficionado

I am going to make it through this year if it kills me
Sorry to hear that.

I've skimmed through your post and I don't think I've seen any mention of it, so here are my 2 cents:

If traditional medicine and doctors won't take her seriously (or just lack the tools to identify and cure whatever ails her), you should look at alternative solutions. I know, I know, you could find people who don't know what they're doing, but you could just as well find this one Chinese medicine practicioner who would do wonders for her. You could start with a fairly recognized field like acupuncture or osteopathy. More generally, medicine that deals with touch, massages and physical manipulation might help her. For instance I know people who've been to a very skilled reiki practicioner and it helped their back pain much more than regular doctors ever could.

Just avoid stuff that's really out there and claims to be revolutionary.

Regardless, how shitty a doctor are you when you don't even want to believe your patients? It's one thing to be skeptic or admitting you have no idea what's wrong, but this? Really unprofessional and insensitive.
This is very dangerous advice.
 

Trojita

Rapid Response Threadmaker
So she hasn't had any steroid injections yet?

Did the MRI check for disc damage and spinal misalignment? Those both can cause nerve pain.

Are the doctor's you've been going to orthopedic specialists? You shouldn't go to a normal doctor for this.
 

zeemumu

Member
The psychiatrists can't do anything to back her story so that the doctors won't just dismiss it? This is a really terrible situation to be put in. I'm sorry that someone close to you is going through this. I wish I had some better advice to give.
 
Absolutely heart breaking OP. Just wish you both all the love and strength and good fortune in the world.

I admire you in your refusal to give up. I wanted to ask whether you are able to support her in wishing to give up though? These are two utterly separate things. I'm sure your understanding and support of her in her despair would mean a great deal to her. Crushing for you though.

With your resolve I'm sure you will find a new and dramatically more supportive set of medical practitioners very soon; and that with their input your fiancée will be able to climb back to a tenable situation from which you can both look forwards once again to a long and happy life together.
 

moggio

Banned
is what? I hope you are being ironic

No. If you've been diagnosed with Fibromyalgia then it's basically your doctor's way of admitting they have no idea what's wrong with you and want you to feel like you've been diagnosed with something to stop you moaning.

An actual diagnosis of an actual problem would be better rather than just a non-specific diagnosis of some non-specific symptoms.
 
If you can take time off work, it would be worthwhile to go to all the Dr appointments together, for moral support and to help provide evidence.

I would also consider going outside of your local drs and finding an expert who has dealt with this situation before. Sending in the assistant seems like amateur hour bullshit.

Finally, have you considered medical marijuana? Its often used as a loophole for stoners, but it has legit medical benefits as well. Its super easy to go to a recreational shop in Denver if that's something you'd consider.
 

Bebpo

Banned
I thought it was fibromyalgia for a while but she doesn't have pain in her legs, arms, anywhere besides mid-back to upper neck and fibro seems to be wide spread pain.

myofascial pain seems to be similarly but more localized to specific areas and often muscle knot related.
 

Tugatrix

Member
No. If you've been diagnosed with Fibromyalgia then it's basically your doctor's way of admitting they have no idea what's wrong with you and want you to feel like you've been diagnosed with something to stop you moaning.

An actual diagnosis of an actual problem would be better rather than just a non-specific diagnosis of some non-specific symptoms.

So you opinion is that people smarter than both of us have been researching something that doesn't exist? Why should I take you seriously anyway?
 

Bebpo

Banned
Tried med marijuana, didn't help at all and just caused side effects like hunger cravings and increased anxiety.
 

Bebpo

Banned
Absolutely heart breaking OP. Just wish you both all the love and strength and good fortune in the world.

I admire you in your refusal to give up. I wanted to ask whether you are able to support her in wishing to give up though? These are two utterly separate things. I'm sure your understanding and support of her in her despair would mean a great deal to her. Crushing for you though.

With your resolve I'm sure you will find a new and dramatically more supportive set of medical practitioners very soon; and that with their input your fiancée will be able to climb back to a tenable situation from which you can both look forwards once again to a long and happy life together.

No, I can't support her wish to give up as much as I try to support her.

She's 21, has a near 4.0 gpa, a clear career she loves on a very reachable path, has friends and is engaged to me in a great relationship. She also has what I believe are diagnosable and curable conditions that can be fixed within 6-12 months with the right doctor and effort.

I do not want her to throw her life away. I know lots of people who lived through chronic pain for years and now lead a pain free great life. Life is a great thing and at 20 you're just getting started and have so much to get out of life.
 
I'd support the idea of finding pain meds on the streets, but that is probably extremely difficult and dangerous. Lucky celebrities, they can just throw some money at the wrong doctor and get their supplies.

Situation is bullshit and unfair. Sorry OP.
 

celebi23

Member
Bebpo, have you tried looking into the Mayo Clinic? In High School, I kept on getting sick, having horrible joint pain & swelling. Had every doctor tell me it was in my head. Went to the Mayo Clinic, had tons of tests and they figured out that I had an auto-immune disease. If the doctors she's seem hasn't been any help at all, I definitely recommend the Mayo Clinic.
 
If you can take time off work, it would be worthwhile to go to all the Dr appointments together, for moral support and to help provide evidence.

This should be good advice, but I once had a bad experience doing something similar. I accompanied my mother to her new doctor once for moral support, and I did literally nothing but be present. The doctor seemed borderline offended I was there, became exceptionally rigid and unyielding, and the appointment ended with him basically inviting her to find another doctor.
 
D

Deleted member 1235

Unconfirmed Member
That's rough mate. I lost my mum to a similar situation. I will say this, discuss with a doctor the possibility of mental illness. My old lady had chronic pain all the time and after her deAth we were not eniterly sure if she actually had pain or thought she had pAin still. The doctors said they couldn't find anything wrong with her spine anymore after a successful fusion but still the drugs and pain etc etc.

Not saying this is happening in your case but consider the possibility and try and discuss with a doc without your SO
 

Ecto311

Member
Ever look into medicinal Marijuana or Kratom? I take kratom daily and it has helped me a ton. I had a med card for weed that just expired since in colorado you dont need it anymore unless you want a huge discount. Weed never worked for me even though I wanted to like it.

Kratom is legal every where that I know of and works well for me and my wife. She was on all kinds of pain meds and kratom is one of the only ones that helps and lifts her mood also.
 
...If traditional medicine and doctors won't take her seriously (or just lack the tools to identify and cure whatever ails her), you should look at alternative solutions. I know, I know, you could find people who don't know what they're doing, but you could just as well find this one Chinese medicine practicioner who would do wonders for her. You could start with a fairly recognized field like acupuncture or osteopathy. More generally, medicine that deals with touch, massages and physical manipulation might help her. For instance I know people who've been to a very skilled reiki practicioner and it helped their back pain much more than regular doctors ever could...

Please don't follow this advice.
 

Durask

Member
I'm not a doctor but doesn't the brain react a certain way when you feel pain? Couldn't they hook her up to something to monitor her brain waves and see she's telling the truth?

Nope.
That's the unfortunate thing - there is no way for a doctor to tell whether a person really has horrible pain or he/she just wants oxy to sell.
 

SgtCobra

Member
Bebpo, have you tried looking into the Mayo Clinic? In High School, I kept on getting sick, having horrible joint pain & swelling. Had every doctor tell me it was in my head. Went to the Mayo Clinic, had tons of tests and they figured out that I had an auto-immune disease. If the doctors she's seem hasn't been any help at all, I definitely recommend the Mayo Clinic.
Will read more into this, thanks.

Like some people here already said, the best thing you can do is to go to the best clinics who are specialized in things like this, I hope you and your SO succeed in finding the right trearment. Keep us updated and only accept the best.
 

Stinkles

Clothed, sober, cooperative
I'm not a doctor but doesn't the brain react a certain way when you feel pain? Couldn't they hook her up to something to monitor her brain waves and see she's telling the truth?

I suffer long term chronic back pain and everyone reacts differently. Pain meds help, but 13 years of occasionally exquisite, frequently crippling pain wears you down. Your tolerance to painkillers increases to the point where aspirin does nothing and powerful meds are pretty toxic with lots of unpleasant side effects.

So I have never felt suicidal but I completely understand how the ops gf got to that state.

One weird side effect for me is that my hands have almost no sensitivity to pain, so I get a lot of burns and cuts.
 
Will read more into this, thanks.

Like some people here already said, the best thing you can do is to go to the best clinics who are specialized in things like this, I hope you and your SO succeed in finding the right trearment. Keep us updated and only accept the best.
Third attempt to post this from mobile...look into the Mayo Clinic. They have 3 clinics in the USA. There are even organizations that can help you fly there for free if you can't afford it.
 

Lathentar

Looking for Pants
also recommending the mayo clinic. Very helpful and won't treat you like crap. You'll be there for a number of days though, but you'll most likely see a large number of doctors.
 

Instro

Member
Wow man that's terrible. I remember you messaging me about this some months ago, due to my own prior back issues, I was hoping you guys would be able to figure it out since I had no advice to offer. :(
 

Bebpo

Banned
Will check mayo clinic.

Kratom sounds interesting, will look into it.

It's not in her head though the extent of it because of a lowered pain tolerance could be. Her injuries aggravate from the things that aggravate those types of injuries and a lot of docs have felt her back and neck and felt odd things that they thought were knots or shortened neck muscles. Plus there's an xray that's only a few months old (only one taken recently) of her neck that shows the curve on her neck is still reversed.
 

Bebpo

Banned
Thanks for all the advice and kind words btw. I feel a lot better and more hopeful.

The challenge will be to get her to feel that way too and give stuff more tries. She had a bad phobia of doctors which led to her not getting the correct treatment for the first six months post-accident. Getting called a druggie and her doctors ignore her cries for help hasn't helped that and I can understand why :/
 

Emerson

May contain jokes =>
OP, does her psychiatrist know that she is actively suicidal? Why is nothing specific being done about that fact?

Chronic pain is a nearly impossible issue to deal with sometimes and both of you really have my sympathy. A couple thoughts:

1) Chronic pain can contribute to psych disorders and psych disorders can contribute to chronic pain. My general impression from the story you've told is that the latter is more prominent here than the former.
2) Chronic use of narcotics has been shown in a number of studies to have the potential to increase pain, in particular to increase the general misery of pain.
3) I certainly hope that her back issues have been evaluated by an orthopedic or neurosurgical specialist and not a primary care doctor.
4) You cannot continue to ignore or put off your fiance's threats of suicide. I don't care if she said December, or that she said she'd find a way to kill herself in a psychiatric facility. She is actively suicidal and has expressed several specific plans and she is unsafe to be at home.

Fibromyalgia is a made-up condition. It doesn't really exist. Doctor's diagnose patients with it when they want to shut them up.

Has your SO tried marijuana?

So you opinion is that people smarter than both of us have been researching something that doesn't exist? Why should I take you seriously anyway?

People will inevitably freak out and get offended by a statement like this but the fact of the matter is that a very high percentage if not majority of physicians and other medical professionals believe this or a variation on it (e.g. fibromyalgia is a somatic or sleep disturbance related syndrome rather than a specific organic disease).
 
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