Rygar 8 Bit
Jaguar 64-bit
hope it turns out to be minor
We didn't realise anything was wrong until he was around 18 months old and he started squinting at us with one eye. At first we thought it might've been a facial tic, but we followed up and it turns out he's far sighted in that eye. It's common in premie babies.I'm picturing a baby wearing baby glasses looking at a newspaper and saying "I don't know, viciouskillersquirrel, with the way the real estate market is right now I don't think we can afford a doll house."
We didn't realise anything was wrong until he was around 18 months old and he started squinting at us with one eye. At first we thought it might've been a facial tic, but we followed up and it turns out he's far sighted in that eye. It's common in premie babies.
Getting him to wear the glasses took a lot of work, but he's four now and as far as he's concerned, they're just what he wears, like underwear or a shirt. The good news is that because we found it early, his eyesight in that eye is improving. Maybe when he's an adult, he'll be able to get corrective surgery or something, but for now, he'll just have to wander around looking like Harry Potter.
I am so grateful that Harry Potter wears glasses, by the way. Good role models for kids who wear glasses are so rare in media. So many kid characters who wear glasses are insufferable goobs, it's nice to see one who can be heroic.
Hey GAF, depressing post I know, but I wanted to vent/generally talk about this without having to resort to Facebook and in turn being bombarded with people I know IRL asking me "how things are" etc
My partner is 8 months pregnant, and on our 32 week scan, it was detected there was extra fluid in the womb - so she was asked to do a Glucose Intolerance test (so far, so normal - they're checking for Gestational Diabetes)
Anywho, missus has the test and then they call us the next day and say to her "There's something we found in your blood, you need to come in and see a consultant" At this point, alarm bells started ringing because they wouldn't tell us what they'd found, nor give a straight answer when asked "Is the baby okay?!"
Slightly panicked, we see the consultant the next day and are advised that baby has possibly contracted CMV (cytomegalovirus) - a piddly little virus that unfortunately can cause major damage, ranging from facial deformities, brain damage, blindness, deafness and everything in between.
We had the news today that the blood was tested further to determine if the CMV was a recent infection, and they've confirmed it is. Now we have to wait until Monday for another scan to determine if she's okay - at least physically. It's encouraging at least that up to the 32 week scan, all measurements of baby (arms/feet/legs/hands/organs/brain/skull) were normal - so I'm mostly confident she won't be disfigured or anything. (Christ even typing the words disfigured or braindamage makes me want to cry my eyes out)
I'll be honest and say we're feeling pretty devastated right now, but hopeful. Never been so scared in my life, but am maintaining total poker face for my partners benefit (she's been forbidden from googling the condition, as it does not make for pleasant reading).
Any parents of GAF ever encountered this virus when pregnant or have disabled children that can offer advice?
<3
Our twin boys were born at 26 weeks, right on the cusp of viability outside the mother. We were matched with them as they were leaving the hospital after 3 months of NICU care and tricky surgeries. When we brought them home they were on oxygen tanks, meds, special feeding schedules, etc. and required many many many checkups.
It was hard to be sure (all parenting is hard!) but we never once loved our sons any less. Kids are super rewarding. As soon as they laugh at your goofy voice or fall asleep in your arms you understand why being a parent is so special.
Good luck!
More Parent GAF checking in. Really sorry to hear your sit, OP. I remember being beyond anxious for the results of the initial DS test. I can't imagine how much more stressful and worrying your sit it. As others have said, could turn out perfectly fine, and I'm crossing my fingers for a happy result. If you want to talk more about it, or see if any of the other parents/expecting GAF have more experience, come check out the Parent Thread. Lots of support and info in there.